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Monday 27 November 2023

The Simple Things

I've often wondered what my life would've been like if I hadn't sat under that eucalyptus tree all those years ago. It felt like I'd become a curiosity of science as doctors and specialists speculated and exchanged theories about the actual source of my unexplained dual sensory loss. It's easier for me to put it down to the spider bite, although that theory shocks some people. It could easily have been a combination of things. Travelling abroad used to entail vaccines for everything, we'll never know the exact cause, but I've spent a massive part of my life living with the consequences. 

I married had my children and worked hard to be a good mum, wife and business partner, but pretending to see and hear sufficiently in a world that didn't make allowance and inclusion for those things was soul-destroying. It's unintentional but extremely common for people with any degree of hearing loss to be 'left out' in general social interaction and within the family structures. 

I struggled on. I Studied Social work for a couple of years but had to drop out because of a lack of inclusion. The same happened with a Psychology course. I even completed a full computer programming course but didn't sit the exam. I was convinced I'd fail it because I hadn't had enough assistance. 

 I decided to join a Political Party not long before an election. It took courage to walk into the local constituency office and explain my desire to help and about my sensory issues. I was horrified when the man I spoke to told me coldly that they didn't need my help. I almost burst out crying with embarrassment and turned to leave, then I spotted another man in the room. He had red hair and a beard and looked kind and friendly. I tried to lip-read when he turned and spoke to the first man. "What the hell did you say that for Jim? Everyone is welcome in this office, and we appreciate everyone's help". He turned to me and smiled. "I'm Robin Cook. Glad you've come to join us. When you're on the biscuit run remember I eat Turnocks Caramel Wafers". He laughed.

Robin Cook MP later became British Foreign Secretary. He always spoke clearly and directly to me and, included me. He became my hero for his goodness, honesty, and fairness. I loved it when he brought his sons to my house and introduced me to them and had a cup of tea. The man who'd made me feel unwelcome was called Jim Devine. He became an MP after Robin's death and was later jailed for corruption.

Robin Cook transformed my life in several ways. He made me feel valued and appreciated. He taught me about politics, and he encouraged me to do things, he didn't look at me as deafblind, he saw the person. I became a campaigner and crusader. Thanks to him I made a brief appearance on News at Ten. Nine o'clock News and a political program. I secured a massive number of signatures to prevent the local construction of a massive waste incinerator.  

Everything changes. Life is simply a collection of phases - Frustrating times. Heartbreaking times. Loving romantic times. Times when everything is a struggle. Times of grief and heartache. Times of excitement. Nothing stays the same... I learned that the hard way...


   

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